Preventing Her Shutdown: Losing My Wife To Alzheimer's
(68) $7.99 kindle Free with KUeBook, Paperback,
Share with your network:

Preventing Her Shutdown: Losing My Wife To Alzheimer's

by Sammie MarsalliPublish: Jun 15, 2022Series: Preventing Her Shutdown From Alzheimer'sBiographies & Memoirs General Nonfiction
      • Sammie Marsalli Sammie Marsalli 1 year ago
        Follow
        Author
      • This book began as a daily diary, noting my wife's behavior and my reactions. This helped me ventilate my sorrow and taught me how to react to her changes and her needs as her caregiver. My “ghost friend” was the laptop screen. Outside professional help just doesn't work because there are no two behavioral reactions to Alzheimer's exactly alike. There is no guide to be followed. I am an ordinary husband and amateur caregiver on my own, inventing and creating ways to keep my wife interactive. I wanted to share these efforts with other amateur caregivers who are going through the same journey alone with their loved ones.
      • report
      • like
      • reply
      • Sammie Marsalli Sammie Marsalli 1 year ago
        Follow
        Author
      • I am constantly taking notes and writing about her behaviors, daily events, and my reactions. I take notes as things happen, so I can easily remember how I felt and how I acted. It is easy to remember feelings in general terms, such as happiness, sadness, etc., but not the thought process that went on during those emotions in detail. This is why I am always writing in real time. It helps me justify or correct my decisions for the next day as her caregiver.
      • report
      • like
      • reply
      • Sammie Marsalli Sammie Marsalli 1 year ago
        Follow
        Author
      • The image of the candle recently flickering and now smoking shows that light is slowly disappearing, just like Alzheimer's slowly shuts down life.
      • report
      • like
      • reply
      • Sammie Marsalli Sammie Marsalli 1 year ago
        Follow
        Author
      • The title Preventing Her Shutdown represents my desperate caregiving efforts to keep my wife active, mobile, and avoid a vegetative state. The subtitle, Losing My Wife To Alzheimer's, acknowledges my futile attempts to fight for her life. At the moment, no other title reflects the content of this book as clearly as this one does.
      • report
      • like
      • reply
      • Sammie Marsalli Sammie Marsalli 1 year ago
        Follow
        Author
      • Chapter 31, “My Dream Comes True,” was my favorite moment as I described how I was able to dance with my wife at my son's wedding, the greatest thrill of my life. Chapter 7, “Slipping Into Oblivion,” and Chapter 20, “Blank Looks,” were the saddest moments of my writing, as these chapters describe how we were unable to connect with each other because she was unable to identify me. Connecting is a must for all caregivers of Alzheimer's
      • report
      • like
      • reply

Error:

Warning:

    • Error:

      Warning:

Preventing Her Shutdown From Alzheimer's complete series

(68) $7.99 kindle Free with KUeBook, Paperback,
Preventing Her Shutdown: Losing My Wife To Alzheimer'sby Sammie MarsalliPublish: Jun 15, 2022Series: Preventing Her Shutdown From Alzheimer'sBiographies & Memoirs General Nonfiction
(10) $4.99 kindle Free with KUeBook, Paperback,
62 Tips For Caregivers Of Alzheimer's To Delay Shutdownby Sammie MarsalliPublish: May 23, 2023Series: Preventing Her Shutdown From Alzheimer'sAdvice & How To Biographies & Memoirs General Nonfiction
(11) $4.99 kindle Free with KUeBook, Paperback,
Holding On To Her Identity: Losing My Wife To Alzheimer'sby Sammie MarsalliPublish: Sep 28, 2024Series: Preventing Her Shutdown From Alzheimer'sBiographies & Memoirs General Nonfiction
$6.99 kindle Free with KUeBook, Paperback,
Advice & How To Biographies & Memoirs General Nonfiction

BIOGRAPHY
My books are born from love and the daily reality of caring for my wife with Alzheimer’s.

I share my journey—not only the struggles, but also the lessons, discoveries, and small moments of grace—in the hope that other family caregivers will know they are not alone.

When my wife was diagnosed, my world changed overnight. I was no longer just her husband—I became her full-time caregiver, companion, and protector. What I didn’t understand then was that caregiving is not only physical. It is emotional, unpredictable, and often overwhelming.

There is no manual for Alzheimer’s. No clear steps. No predictable path.

There is no chronological order in how to care for a loved one with dementia, including Alzheimer’s. This is not a step-by-step process. Behavioral changes are often spontaneous and vary depending on the type of dementia and its stage. Every person’s journey is unique.

What works one day may not work the next. What is comforting today may cause distress tomorrow. Like many caregivers, I learned through trial and error—often in difficult moments, with no time to prepare.

Caring for a loved one at home, without immediate help, means facing situations in real time. In those moments, there are no instructions—only intuition, patience, and love.

In response, I developed my own ways to help my wife stay engaged, connected, and present—particularly during the quiet moments when connection begins to fade. That “blank look” is the moment I fear most. It is in those moments that I act, making small adjustments, small efforts—anything that might help her hold on to her sense of self, even as the disease progresses.

I am not writing as an expert. I am writing as a husband, married for over four decades, a father of three, and a full-time caregiver doing the best he can each day.

My hope is that these books offer something practical, something honest, and something comforting—so that other caregivers may feel less alone, less overwhelmed, and better prepared for the unexpected moments this journey brings.

If you are caring for someone with Alzheimer’s or another form of dementia, you already understand the depth of love and sacrifice involved. You also know that, even in silence, our loved ones are still trying to live.

If my experiences can ease even a small part of your journey, then sharing them has been worth it.

These books reflect different parts of the caregiving journey—from daily survival to staying connected and understanding what is being lost.

My caregiving book, Preventing Her Shutdown: Losing My Wife To Alzheimer’s, shares my firsthand experience of trying to stay connected with my wife as Alzheimer’s changed the way she communicated, responded, and engaged with the world around her.

It is a story of trial and error, intuition, love, and the determination to keep reaching the person I love.

The Power of Love Permits the Unimaginable.

Sammie Marsalli other Books

(10) $4.99 kindle Free with KUeBook, Paperback,
62 Tips For Caregivers Of Alzheimer's To Delay Shutdownby Sammie MarsalliPublish: May 23, 2023Series: Preventing Her Shutdown From Alzheimer'sAdvice & How To Biographies & Memoirs General Nonfiction
$6.99 kindle Free with KUeBook, Paperback,
(11) $4.99 kindle Free with KUeBook, Paperback,
Holding On To Her Identity: Losing My Wife To Alzheimer'sby Sammie MarsalliPublish: Sep 28, 2024Series: Preventing Her Shutdown From Alzheimer'sBiographies & Memoirs General Nonfiction
Book Detail
Title Preventing Her Shutdown: Losing My Wife To Alzheimer's
Series Preventing Her Shutdown From Alzheimer's
Author Sammie Marsalli
ASIN B0B48L87XV
Publish Date 15, Jun 2022
Publisher Amazon
Language English
Page Count 196
Cover Design Amazon