Book Discussion: Preventing Her Shutdown: Losing My Wife To Alzheimer's

Preventing Her Shutdown: Losing My Wife To Alzheimer's
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Preventing Her Shutdown: Losing My Wife To Alzheimer'sby Sammie MarsalliPublish: Jun 15, 2022Series: Preventing Her Shutdown From Alzheimer'sAdvice & How To Biographies & Memoirs General Nonfiction
      • Sammie Marsalli Sammie Marsalli 2 months ago
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      • This book began as a daily diary, noting my wife's behavior and my reactions. This helped me ventilate my sorrow and taught me how to react to her changes and her needs as her caregiver. My “ghost friend” was the laptop screen. Outside professional help just doesn't work because there are no two behavioral reactions to Alzheimer's exactly alike. There is no guide to be followed. I am an ordinary husband and amateur caregiver on my own, inventing and creating ways to keep my wife interactive. I wanted to share these efforts with other amateur caregivers who are going through the same journey alone with their loved ones.
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      • Sammie Marsalli Sammie Marsalli 2 months ago
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      • I am constantly taking notes and writing about her behaviors, daily events, and my reactions. I take notes as things happen, so I can easily remember how I felt and how I acted. It is easy to remember feelings in general terms, such as happiness, sadness, etc., but not the thought process that went on during those emotions in detail. This is why I am always writing in real time. It helps me justify or correct my decisions for the next day as her caregiver.
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      • Sammie Marsalli Sammie Marsalli 2 months ago
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      • The image of the candle recently flickering and now smoking shows that light is slowly disappearing, just like Alzheimer's slowly shuts down life.
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      • Sammie Marsalli Sammie Marsalli 2 months ago
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      • The title Preventing Her Shutdown represents my desperate caregiving efforts to keep my wife active, mobile, and avoid a vegetative state. The subtitle, Losing My Wife To Alzheimer's, acknowledges my futile attempts to fight for her life. At the moment, no other title reflects the content of this book as clearly as this one does.
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      • Sammie Marsalli Sammie Marsalli 2 months ago
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      • Chapter 31, “My Dream Comes True,” was my favorite moment as I described how I was able to dance with my wife at my son's wedding, the greatest thrill of my life. Chapter 7, “Slipping Into Oblivion,” and Chapter 20, “Blank Looks,” were the saddest moments of my writing, as these chapters describe how we were unable to connect with each other because she was unable to identify me. Connecting is a must for all caregivers of Alzheimer's
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